Cancer, Fear and Radiation

Psalm 56:11 (NKJV)

In God I have put my trust; I will not be afraid. What can man do to me?

Mark 5:36 (NKJV)

As soon as Jesus heard the word that was spoken, He said to the ruler of the synagogue, “Do not be afraid; only believe.”

Luke 8:50 (NKJV)

But when Jesus heard it, He answered him, saying, “Do not be afraid; only believe, and she will be made well.”

One of the greatest fears is hearing a doctor say, “I am sorry, but you have cancer.” Known as the “C” word, having a diagnosis of cancer evokes fear of not only death but a death preceded by agonizing pain and suffering. Cancer is unique in that it can attack just about every organ in the human body. And worse, it has a way of sneaking up on you with little or no waring symptoms.

I don’t remember when my mother confided in me that I was born with cancer. Weeks after my birth a birthmark on my back turned black in a matter of hours. She summoned our doctor who excised a cancerous tumor that was miraculously contained in a fleshy sack. Afterward I was treated with radium to ensure that none of the cancer had escaped into my body. For 1943, this was a rare episode in a child’s life.

By the grace of God, the cancer was successfully removed with a lifelong scar and gap in my back muscle the only consequence.

For decades, I witnessed many people in my life who suffered cancer in a myriad of types with a wide variety of consequences. Most eventually lost their lives either directly or indirectly from the cancers that plagued them.

I was 76 years old when cancer came again to knock on my door. It came as was common for men over 50 to find its way to the prostate gland. It has been a common annual test for men’s physical exams to include PSA in a comprehensive blood test. PSA stands for Prostate-Specific Antigen, a protein produced by normal as well as malignant cells in the prostate gland. The PSA test measures the level of PSA in the blood.

For men in their 40s and 50s, PSA levels of below 2.5 ng/ml is normal. This age group has a normal range of 0.6 to 0.7 ng/ml. Men in their 60s are considered abnormal at PSA levels above 4.0 ng/ml and normal between 1.0 and 1.5 ng/ml. Diligent doctors will not only consider the levels but will watch for trends over time.

Since I had family members who were both older and younger that me who had been diagnosed with prostate cancer as well as other cancers, my doctors where carefully watching my annual blood tests. For more than 10 years, my urologist and internist monitored the PSA levels of my annual blood workups.

When my PSA levels were approaching 4.0 ng/ml, my urologist performed a needle biopsy of the prostate. The PSA levels slowly inched up each year but at very small increments. Then in July 2019 my annual physical exam’s blood test revealed an alarming jump from 4.0 to 8.0 ng/ml. This sparked an urgent appointment with my urologist, Dr. Naitoh.

The doctor recommended a comprehensive needle biopsy to see if cancer was present. Since the biopsy was going to be more extensive than the previous one done in the office, this one required a hospital outpatient procedure under anesthesia.

At the same time, I was suffering for eight months with extreme pain due to a bout with polymyalgia rheumatica. I was amid constant efforts to deal with the ravages of the disease. I also was facing the need for total knee replacement surgery. It was decided to delay the prostate biopsy to November 14th. The biopsy results came in on November 21st.

Carol and I met with Dr. Naitoh on November 21st. Not knowing the results of the biopsy prior to our meeting, I prayed and asked God to guide me with His Spirit to help me make the right decision for whatever the outcome of the tests. I also asked if He would have His Spirit guide my doctor to provide me with the best information to lead me to the best decision.

The doctor wasted no time telling us that the biopsy revealed two small sites with cancer cells. He said that the type of cancer was very slow growing and the typical protocol for this cancer was to take a “wait and see” approach. However, the doctor advised that he would recommend a very aggressive treatment. He based this on the fact that the PSA level had so rapidly doubled. That fact revealed to him that something out of the norm was going on with my case. The pieces of evidence didn’t stack up to what would normally be the plan to move forward. We agreed with his advice to move forward aggressively.

The doctor proceeded to present several possible procedures and the typical side and long-term effects of each. They included a variety of surgical and radiation solutions and combinations of both. Then he added a solution that was new to me. It was a radiation solution called CyberKnife. The doctor gave us a few brochures that gave details of the various solutions.

Carol and I returned home and did our research that included contacting my relatives and friends who had used some of the options. I prayed and sought the guidance of the Holy Spirit as considered each option. The CyberKnife solution rose to the top consideration for several reasons. The two reasons that became paramount in influencing my decision were the better long-term and short-term effects and my experience with radiation.

CyberKnife was somewhat of a misnomer as there is no “knife” in the procedure. The procedure required the planting of two small pure gold “seeds” the size of a grain of rice at the biopsy located cancer sites. These fiducials are used in the radiation process. After the fiducials are implanted the patient’s prostate a cat scan and MRI are performed and used to locate alignment marks placed on the patient’s torso. The procedure then begins for five consecutive days for treatment. The procedure places the patient on a bed in the treatment room. A series of alignments are made using the results from the cat scan and MRI data and the alignment marks on the patient’s torso. A radiation source is mounted on a robot and once the patient is aligned on the bed, the process begins. The process moves the radiation source by the robot moving into successive angles to focus a low energy radiation beam through the prostate. The key is that this process focuses on the fiducials and hence the cancer cells while minimizing the radiation exposure to the adjacent healthy cells.

In the late 1970’s and the 1980’s I was working with radiation applications to the solution of many issues in industry. Focused radiation solutions were found to be extremely effective. This experience gave me confidence in CyberKnife technology. As this personal understanding surfaced during my deliberations on which solution to embrace, I felt that this was the spiritual guidance I was seeking.

On December 9th we met again with Dr. Naitoh and discussed our decision to employ the CyberKnife procedure to treat my prostate cancer. The doctor arranged for us to meet with Dr. Fuller at the CyberKnife facility.

During the previous days since the biopsy revelation, I was daily investigating the various treatments for prostate cancer and the side effects on the computer. Now having decided on CyberKnife, I continued my internet searches with renewed focus. We had an appointment with Dr. Fuller on December 19th. On the evening of December 18th, I made my final inquisition on the computer. Unlike previous inquiries, something new appeared on the screen.

An advertisement for SpaceOAR Hydrogel appeared for the first time in my searches. I read the ad:

SpaceOAR Hydrogel is a PEG-based hydrogel designed to temporarily create space between the prostate and rectum and reduce the radiation dose delivered to the rectum during radiation therapy. It has been clinically shown to help minimize urinary, sexual and bowel side effects and help protect the quality of life for prostate cancer patients undergoing radiation therapy.

As I read this I wondered, why did this come up now? Does it have any bearing on my decision for CyberKnife? Is it confirmation or a warning?

The name “Hydrogel” stuck in my memory, and I included it specifically in my prayers to attain a level of guidance and confirmation from the Holy Spirit.

The next morning Carol and I met with Dr. Fuller. We were waiting for the doctor to come into the exam room when I looked around the room. I noticed on the counter a plastic document holder with brochures titled Hydrogel! I poked Carol and directed her attention to the brochures. We exchanged smiles.

Doctor Fuller arrived and we discussed the CyberKnife procedure. He answered our questions and shared with us the results experienced by past patients.

Finally, I asked my burning question, “Doctor Fuller, I noticed on the counter the Hydrogel brochures. What is your perspective on Hydrogel?”

He responded enthusiastically, “I would not perform our CyberKnife procedure without Hydrogel.”

He then went on to describe how Hydrogel is employed. When the gold seed fiducials are inserted into the prostate, the Hydrogel is applied as well.

I felt that this whole experience with Hydrogel was God’s way of confirming our decision for CyberKnife.

We made the final decision and set up the next steps for the procedure. Due to the other issues, I was facing at the time, we decided to delay the CyberKnife until March 5th, 2020.

On that date, the gold fiducials and the Hydrogel were inserted at the CyberKnife facility. The Cat Scan and MRI were performed on March 10th. Then on Monday March 30th and through April 3rd, I underwent each day the CyberKnife procedure. I began taking Flomax medication to keep any prostate swelling to a minimum.

The first PSA blood test following the procedure was June 2nd that revealed the PSA down to 1.5 ng/ml, down from 8.9 that was the last reading prior to the CyberKnife treatment. On July 16th I met with Dr. Naitoh who said that the Prostate had shrunk 20% and that the bladder was unaffected and healthy. By October 5th the PSA was down to 1.0 ng/ml.

In April my PSA was down to 0.7 ng/ml. The PSA levels continued to drop and by 2023 it was down to 0.1 ng/ml. Except for some minor bleeding from the prostate from November 2020 through March 2021, the side effects were essentially nonexistent.

I acknowledge how I was guided by the Holy Spirit in making the decisions and the doctors were led to provide the advice that helped see the right path for me. I found it fascinating how my past work experience and the internet searches played into the decision-making process.

   COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINTS

When we take the time to search our experiences, turning points are revealed along with the parts that our faith and trust in God have played. Inspirational are these discoveries and the critical part that God has in the results of our decisions. Sharing our turning points can hopefully inspire others to consider their own turning points that changed their lives forever.

Recommended reading on Cancer: Cancerland, by Dr. David Scadden 

Sudden Onset – Polymyalgia Rheumatica

Isaiah 41:10 New King James Version

10 Fear not, for I am with you; Be not dismayed, for I am your God.
I will strengthen you, Yes, I will help you,
I will uphold you with My righteous right hand.’

 

There are some things that we secretly fear and avoid talking or even thinking about. We fool ourselves into thinking that if we avoid thinking about it, it will somehow escape us. One of those fears, common to most humans, is the fear of excruciating pain. Severe and uncontrollable pain is high on our lists of fears. I have experienced the pain of kidney stones passing through the tubes of the urinary tract. The pain is such that there is no position that relieves the pain in any degree. Suffering pain when there is no possible relief is a fearful situation.

On the morning of March 28th, 2019, I was awakened at two o’clock in the morning with an urge to go to the bathroom. I lifted the covers and when I lifted my legs to get out of bed the pain in my thigh muscles was intense. I was in shock. What was going on? Where did this pain come from? I agonized to put my feet on the floor. With intense leg pain with each leg step I hobbled awkwardly to the toilet and relieved myself. The pain in my thighs was unrelenting as I painstakingly made my way back to bed.

Once supine and the muscles relaxed, the pain disappeared. I was confused. What had just happened? What could have caused this? I was thinking, no hoping, that with the pain gone it was gone for good. I prayed and thanked God for the relief and went off to sleep.

Two hours later, I awoke again and to my dismay, the pain returned to repeat the two o’clock episode. Now I began to worry. Is this some kind of disease I have? I questioned God. Is this going to be debilitating? Will I lose my ability to walk? Back in bed with muscles again relaxed, the pain again dissipated. I couldn’t sleep any more. Speculation dizzied my thoughts. Intense fear crept into me. I sure didn’t see this coming into my life.

After I painfully made my way to the kitchen and made breakfast, I cleared my head enough to try to understand what could be causing this. It was very strange as within a half hour of moving around, the pain relieved to a point of tolerance and within an hour was gone. This went on for a week.

The morning of April 4th, one week after the onset of the pain I remembered that a potential side effect of a statin medication was muscle pain. I had suffered a stroke three years prior and had been taking a statin medication since then without issues. I hoped that maybe that was the cause of my pain. I called my doctor and explained the pain and my theory about the statin drug. He suggested I stop the statin medication for a week and see what happens. I stopped taking the drug that evening.

A week passed with no relief. Each day the pain levels increased and soon included hips, arms, and shoulders along with the thighs. As each day wore on the pain subsided until it was gone by early afternoon only to return by two o’clock in the morning. By the second week the pain reached such a level that was simply intolerable. I awoke on April 11th and finally had my wife take me to emergency at the hospital.

By now the pain was so intense I could barely walk. I waddled into the emergency receiving area like I was about to collapse, awful pain with every step. I made it to the clerk at the desk. Explaining my experience, I was immediately seated in a wheelchair and after signing in whisked to a room in the bowls of the hospital’s emergency area.

Hurting severely, I stood up to get into the hospital bed. I grimaced holding back the scream that wanted so desperately to express my agonizing pain. As before, once supine on the bed the pain began to ease as my muscles relaxed. A nurse quickly arrived and started an IV and took some blood samples. Soon after a doctor came in and asked the standard questions.

“Once we have the blood work results, we will have a plan to take care of this. How do you feel now?” He asked.

“I am fine now, no pain. But if I try to flex a muscle, the pain returns.”

An hour passed and the nurse returned to inject medication into my IV. Within minutes I could flex my leg muscles without pain.

“Wow, that was quick. What just happened?” I asked.

When the doctor returned, he gave me his assessment.

“The blood work indicated severe inflammation of your circulatory system. (C-Reactive Protein levels that indicate inflammation are normally less than 0.5 mg/dl, mine was 138 mg/dl) But the rest of the results and the specific location of your pain indicate that you have Polymyalgia Rheumatica. It’s an autoimmune disease. We treat it with low dose steroids. You need to see your regular doctor in the next few days for ongoing treatment. I have prescribed 15 mg of Prednisone.”

I already had an appointment for my annual physical exam with Dr Sun on April 15th.

In his exam room he looked at me and said, “We are not doing your annual physical today. This report from the emergency room visit is serious. How are you feeling today?”

“After the emergency room visit, I was fine for a couple days, taking 15 mg of prednisone each morning. But yesterday and today, the pain is back as bad as before.” I answered.

The doctor increased my Prednisone to 20 mg and set my next appointment for a week after.

This time there was no significant reduction of pain. Dr. Sun increased the Prednisone to 60 mg. But he asked me if I had any headaches.

“Yes, I have had a couple and took some Tylenol, but they didn’t have much effect,” I responded.

“This diagnosis of Polymyalgia Rheumatica can have some very serious consequences. We must treat it aggressively. But you need to see a Rheumatologist as they are the specialists for this disease. I have taken the initiative to set up an appointment with Dr. Kim the day after tomorrow. The biggest risk is Temporal Giant Cell Arteritis, which if untreated leads to permanent blindness. I will get you an appointment with a Neuro-Ophthalmologist before you leave today. You will need a biopsy of your temporal artery to determine if you have Giant Cell Arteritis. But we must treat this as though you do have it. I will be prescribing higher doses of Prednisone until we have the biopsy results.”

This was a lot to take in. I left the doctor’s office with two appointments and a prescription for prednisone. For the next two days I took 30 mg of Prednisone in the morning and again at night. Finally, at those levels I was pain free.

Two days later I met with the rheumatologist, Dr. Kim. She had me change the dose and frequency to 60 mg in the morning only.

Two days later I had my appointment with the Neuro-Ophthalmologist for the temporal artery biopsy. When I awoke that morning, the pain was right back at its highest levels. Obviously, the morning only regime with the Prednisone wasn’t working.

I had inquired the previous day as to what was needed from me for the biopsy. Did I need someone to drive me home afterwards? How long would it take? Any special restrictions that I needed to consider?

The medical assistant said, “No need for someone to drive you. The biopsy procedure is very simple with only a local anesthetic. It takes about twenty minutes. You will be out of here in an hour at the most.”

I was also suffering at the time from an enlarged prostate. That necessitated frequent urination. I also was on a blood anti-coagulant medication. Unfortunately, with the speed of this biopsy I couldn’t stop it early enough to make a difference for the “minor” surgery for the biopsy. The doctors were not concerned.

When I arrived at the doctor’s office, I made it a point to visit the restroom to ensure that I wouldn’t need to use it during the procedure. I limped in agony into Dr. Edwards office  and checked in at the reception desk. They said it would be a few minutes before I was called.

When my name was called, I was first ushered into a small room where a very preliminary eye exam. I wondered what that had to do with the biopsy. I was now led to the exam room that was outfitted like a typical eye examination room. Dr. Edwards arrived and after introductions he began to explain what was going to happen.

He began, “First I will give you a complete eye examination to assess the baseline health of your eyes. Then I will perform the biopsy of your right temporal artery. But before that we will have to decide as to the pathology lab to do the biopsy.”

The doctor continued with a detailed dissertation as to the risks of temporal giant cell arteritis and the permanent blindness it produces if untreated. The emphasis was on discovering if I had it or not. He explained that another Neuro-Ophthalmologist from Loma Linda Medical Center just happened to be in the office that day (she never ever came in on a Friday). He said that she could take the biopsy sample with her to her lab in Loma Linda and a superior pathology test result would result compared to a local lab’s test.

“So where shall I send the biopsy sample Allan?”

“Doctor, I prayed that you would be guided by God today to serve my best interest. Please, you make that decision.”

“It’s going to Loma Linda!” he instantly proclaimed.

After the eye exam, I was taken to the operating room and placed on the table. Every step still greeted me with excruciating pain. Again, as I lay down, I could relax my muscles and the pain subsided as the nurse prepared for biopsy surgery. I was a bit unnerved as I realized that the local anesthetic would allow me to be to be fully conscious and hear every word spoken and every noise that would emanate from the surgical procedure.

Now the anti-coagulation medication I still had in my system was about to make its presence known. The lidocaine injections were uneventful and painless. The surgery proceeded with the 2-inch-long incision and the bleeding commenced. It was a challenge for the surgeon to control the bleeding. I could hear the constant sizzle of the cauterizing used to stop the bleeding. Finally, after more than 20 minutes the bleeding was under control.

The search for the artery to be excised began. This too, was a challenge, as my low blood pressure seemed to cause the artery to collapse and hide from sight. The surgeon and his assistant struggled to find and secure the elusive vessel for excision.

I heard what to me sounded like a frantic interchange between doctor and nurse.

“There it is!”

“Oops it’s gone again!”

“No, there it is!”

“Oh no, it’s disappeared again.”

This struggle continued for thirty minutes until the doctor told the nurse to summon the specialist from Loma Linda for help.

The last words you want to hear while under the knife are “OOPS!” or “WOW!”

Momentarily the other doctor arrived on the scene. Since I had my eyes covered, I could only imagine the scene.

Dr Edwards explained the dilemma they were having and asked her what she thought. As she peered into the open incision on the side of my head, she exclaimed, “WOW! Never saw anything like that before!”

I was reeling in my thoughts. What in the world is going on? I sure hope they can figure this out! Again, and again I silently prayed for divine intervention.

The doctor quickly offered some guidance. Dr Edwards and his assistant finally isolated the artery. With the other doctor’s approval of the isolated sample, the vessel was tied off and excised.

Now two plus hours into the surgery, I was being sutured. By now my bladder was at the bursting point. I asked the doctor if he could please hurry as I really needed to use the restroom. He said he was going as fast as he could. A few minutes later he said we are far enough along for you to get up and we will finish when you get back.

Sutured and back on my painful feet again I was led to the restroom a few feet away from the operating room. But alas it was occupied! My last resort was the public restroom in the corridor. Fortuitously it was vacant, and I could at last relieve myself.

I returned to the operating room for the final stitching. Dr. Edwards suggested I go back to Prednisone 30 mg in the morning and 30 mg at night until I see Dr. Kim again.

I scheduled a follow-up visit with Dr. Edwards and painfully made my way to my car to return home. It was now well over two hours past the expected conclusion to the surgery.

Three days later I visited Dr. Kim again. This time my Prednisone was modified to 40 mg in the morning and 20 mg at night. This resulted in manageable and very low pain levels.

On May 2nd I visited Dr Sun for a checkup. He was pleased that the pain was very much under control.

One week later at Dr Edwards’ office the sutures were removed from the biopsy incision, but there was no news yet on the biopsy results.

Finally on May 18th the biopsy results came back. My phone rang and Dr. Edwards gave me the good news, “No Temporal Giant Cell Arteritis!” I was so relieved. Now all I had to do was find a more permanent solution to the Polymyalgia Rheumatica pain. Remaining much longer on such high doses of Prednisone was not good.

Two days later I met again for follow up with Dr, Sun.

On May 22nd Dr. Kim began to diminish the Prednisone, 40 mg in the morning and 10 mg at night.

In the days and weeks that followed, Dr Kim continued to explore the diagnosis to determine if other issues were in the mix all while slowly diminishing the steroid doses. I had neurological tests to rule out nerve damage in my legs and bone density scans to determine detrimental effects of the high steroid doses. Pain management is always tricky as the steroid doses decrease, because if too aggressive pain returns. The goal is to get the steroid to the lowest possible levels, typically 5 to 15 mg once per day.

May 31st it was reduced to 40 mg in the morning and 5 mg at night. By June 2nd I was at 40 mg in the morning only, with none at night. Three days later I dropped the morning dose to 35 mg.

On June 15th the Prednisone was down to 30 mg in the morning. Reductions continued until it was 25 mg on June 25th and 20 mg on June 28th when pain suddenly returned to my hands and shoulders. On the 30th I began taking Fosamax.

The pain in my joints began to return progressively getting worse each day. By July 7th with the reduction of Prednisone to 15 mg the pain was almost as high as when it all began 3 months before. But Dr. Kim was undeterred in getting me off the Prednisone.

I began taking Methotrexate tablets (4 tablets) on July 10th that resulted in a significant reduction in pain levels.  On the 12th the Prednisone was reduced again to 10 mg. Again my pain levels jumped to high levels and the Methotrexate was increased (6 tablets) and Meloxicam was introduced. Immediately the pain levels began to drop again.

The Prednisone was dropped to 5 mg on the 20th and the pain returned but at a much slower amount. But by the 25th the pain had reached quite high prompting Dr, Kim to raise the Prednisone up to 10 mg.

On the 26th of July I received concerning news from my Urologist, Dr, Naitoh. He had been monitoring my PSA levels for ten years. It was very slowly getting higher. A few weeks prior I had my annual physical and urological tests. The doctor advised me that my PSA was suddenly at 8, almost double from the previous year. He wanted me to set up an appointment soon.

I met with Dr. Naitoh on the 30th and he advised me of his concerns with the PSA of 8. He suggested a needle biopsy of the prostate as soon as possible to assess the situation.

Meanwhile, the pain in my thighs, hips, arms, hands, neck and shoulders continued while on the 10 mg Prednisone. Levels of pain at 6, 7, and 8 on a scale of 1 to 10 were being experienced.

By August 7th, Dr. Kim stopped the Methotrexate tablets and I began 0.7 ml injections once a week. The pain persisted but at slightly lower levels. I visited my cardiologist for a heart test that proved excellent.

On August 27th I had an ultrasound on my legs with no blood clots discovered. The Methotrexate was increased to 0.8 ml on the 28th. Pain levels had eased to levels of 3 and 4.

On the 31st Carol and I went on vacation to Utah for a week, despite the consistent pain. We enjoyed our travels, but the walking was quite uncomfortable. By Thursday my Prednisone pills were running low and I had to reduce the dose from 15 mg to 10 mg. (Just prior to vacation the Prednisone doses were briefly raised to get me at pain levels that I could tolerate on vacation.)

By the last day of vacation, the pain in my legs and hip were so severe I needed a wheelchair to navigate the airport. Upon my return I made several doctor’s appointments to further asses my physical situation.

September 11th, I met with my orthopedic surgeon to assess my two knees that had partial knee replacements years prior. X-rays showed that my left knee had lost what cartilage had been left. Full knee replacement surgery was now the plan.

September 27th, I ceased Meloxicam but continued with the 0.8 ml Methotraxate weekly injections. The Prednisone was reduced to 7.5 mg. Since my return form vacation all my pain levels had reduced to levels of 1 to 3.

Early October the Methotrexate was increased to 0.9 ml. Surprisingly, there was a up tick in pain levels. I took a Meloxicam pill and the levels dropped again.

On the 25th I stopped Meloxicam and reduced the Prednisone to 5.0 mg. After three days the pain made a significant jump and I returned to 7.5 mg Prednisone.

At this point was facing a knee replacement and a prostate biopsy along with the pain management. The knee preplacement was put off for the time being by having my knee drained of an accumulation of fluid on November 7th in hopes of easing that source of pain.

I had an extensive prostate biopsy performed in the hospital on November 21st under full anesthesia. December 9th Carol and I met with Dr. Naitoh to review the biopsy results. He said that the biopsy identified two cancer sites within the prostate. However, the type of cancer was a very slow growing kind and normally the prognosis would recommend a watch and see regimen. However, the doctor shared his concern that the PSA level had increased drastically and now was almost at 9.0 from the 8 in April. He opined that there was something going on that was not normal. He recommended aggressive treatment.

After discussing the possible treatments and their side effects and long-term effects on my health and life, we decided on a treatment called CyberKnife. This was the least invasive and had the fewest side and long-term effects. The plan was set in motion. (The rest of this story will be in another article)

The dance of Prednisone juggling and pain management continued. November 16th to 6 mg, December 11th to 5 mg, and January 5th to 4 mg.

January 20th, I had my left knee full replacement surgery. From the 28th through February 10th the Prednisone was upped to 10 mg to assist with the knee replacement rehabilitation. On the 11th it was reduced to 6 mg.

The reductions continued with February 25th to 5 mg, March 12th to 4 mg, April 3rd to 3 mg, April 10th to 2 mg, April 27th to 1 mg and finally May 13th the Prednisone ceased.

March 28th to May 13th almost fourteen months and the pain was finally under control with the Methotrexate 1.0 ml weekly injections. I have been diagnosed with Rheumatoid Arthritis  and visit with my rheumatologist on a quarterly schedule where my progress is monitored along with blood test to assess any changes that are needed with medications.

During 2020, in addition to the pain management, I had a successful total left knee replacement, successful spine surgery to open the clogged nerve passages between L3 and L4 vertebrae, and successful prostate cancer procedure with CyberKnife radiation. That procedure resulted in PSA levels being reduced from the high of 8.9 to 1.5 after four months and to 1.0 after seven months. Three years later it stood at 0.1.

All during this “adventure” I put my trust in the Lord my God to carry me through. I asked for the guidance of the Holy Spirit for each of my doctors as they plied their talent, skill and expertise to serve my needs such that the will of God for me would be realized. The whole of the experience has served to edify my faith and trust in my God and know He listens to my prayers and responds in a most blessed way.

 

  COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINTS

This experience was truly a journey of trust in the Lord. The countless moments of testing my resolve and attempting to understand each setback to my health and wellbeing was in the end a treasure. It was a turning point that gave me renewed faith and trust that God is with me and that with Him I can traverse challenges yet to be faced. It confirms my perspective that with the right attitude and sincere gratitude, adversity can be dealt with such that one will grow beyond all expectations leaving adversity and fear behind.  

 

NOTE: 

Polymyalgia rheumatica (PMR) is an inflammatory disorder that causes widespread aching, stiffness, and flu-like symptoms. It is more common in women than men and is seen more often in Caucasians than other races. It typically develops by age 70 and is rarely seen in people younger than 50. PMR may last from one to five years; however, it varies from person to person. Approximately 15 percent of people with PMR develop a potentially dangerous condition called giant cell arteritis.

Giant cell arteritis (GCA), or temporal arteritis, is an inflammatory disease affecting the large blood vessels of the scalp, neck, and arms. Inflammation causes a narrowing or blockage of the blood vessels, which interrupts blood flow. The disease is commonly associated with polymyalgia rheumatica. If left untreated it can cause untreatable blindness.

Adversity To The Rescue

 

Genesis 50:19-20 New King James Version

19 Joseph said to them, “Do not be afraid, for am I in the place of God? 20 But as for you, you meant evil against me; but God meant it for good, in order to bring it about as it is this day, to save many people alive.

Genesis 50:19-20 The Message

19-20 Joseph replied, “Don’t be afraid. Do I act for God? Don’t you see, you planned evil against me, but God used those same plans for my good, as you see all around you right now—life for many people.

Adversity to the rescue.

I have experienced countless times when I have lived this very truth, God has the ability and desire to turn adversity into blessings. When facing problems, I trust the Lord who inevitably has “something up His sleeve” to surprise me as He reveals His solution in His perfect time.

I am reminded of the following story that illustrates this truth.

The Donkey in The Well

   A farmer had an old dried up well on his farm. No matter what he did, he could not revive the well and so planned to fill it in. But alas he procrastinated.

   One day his prized donkey wandered around the farm and came upon the well. Curious, the donkey edged closer and closer until standing at the brink the ground gave way and the donkey tumbled into the well.

   Standing for hours trapped in the well, the donkey figured his time had come and he was about to die.

   The farmer, noticing that his prized donkey was nowhere to be seen began to wander around in search of the wayward donkey. As he approached the well, he heard the wining brays of the donkey.

   The donkey thought, “Aha, finally my master has arrived to rescue me!”

   The farmer, upon gazing on the dilemma that now faced him wondered, “How am I going to get the donkey out of the depths of the well?”

   Suddenly, an idea came to the famer’s troubled mind. Off he went to the barn running with purpose.

   The donkey was now in a state of extreme dismay as he heard his master leaving. “What is this?” he mused, “I thought he was going to rescue me? I am doomed!”

   Now the farmer quickly returned with a shovel and proceeded to vigorously shovel the dirt he had prepared to fill in the well. Shovelful after shovelful fell into the well each landing on the confused donkey. The farmer’s shoveling was relentless.

   The donkey, standing at the bottom of the well was furious. “What in the world is my master doing? Trying to bury me? Has he given up on saving me? What am I going to do?”

   The donkey had no other recourse than to shake off each shovelful as they landed on his back and then step up as the dirt piled up around his feet. Step by step, shovelful after shovelful, slowly the donkey rose until the well’s edge was in sight. Suddenly the donkey realized he was being saved.

   The farmer soon had the donkey within a few feet of ground level and the donkey was finally stepped out of the well.

 

This story illustrates what happens when we are facing adversity in life and we become overwhelmed as there is no feasible answer readily known. We might tend to feel lost and with little or no hope of a positive resolution.

I wonder what went through Joseph’s mind before he realized “what God had up His sleeve” for him. After all, Jospeh experienced a long string of one adversity after another. But in the long run, he became the great blessing for multitudes of people that God intended.

Adversity is the crucible that transforms for the greatest good for so many. Is your current bout with the adversity you are facing today having the makings of transforming you into a blessing for many? What does God “have up His sleeve” for you?

A dear friend of mine once said, “When you are facing adversity, it’s God saying, ‘Do you trust Me’?” Trusting the Lord with genuine and authentic trust is critical. Just think of the donkey. How much grief could have been avoided if only he trusted his master. Even when understanding is lacking, true trust can and will get us through to the final solution.

(See my book, Solomon’s Recipe for more on the power of trusting the Lord. There is a post – March 2015 – on this blog of my turning point “Solomon’s Recipe“ that inspired the book. See www.allanemusterer.com for more information)

COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINTS

The realization that God is good, and He has only good for me, is the turning point that allows me to trust Him with an authentic trust. This saves me from unnecessary worry and fear and frees me to keep an eye focused on what my Lord has “up His sleeve” for my blessed future.

Who do I Trust?

Nahum 1:7 New King James Version

The Lord is good,
A stronghold in the day of trouble;
And He knows those who trust in Him.

This is the question that we face when things have not gone our way. When we find ourselves steep in a dilemma that life has sprung on us unawares. Where do we go? Who do I trust to get me through for the most beneficial outcome?

I have traversed eight decades of life and the troubles of life never cease to challenge me. It’s always a range of things from the simple to the complex, from the familiar to the unknown. My book, Solomon’s Recipe, provides a tried-and-true solution that has brought me through countless challenges. The recipe begins with the requirement for trusting in the Lord. Not just any trust, but genuine authentic trust. The trust that is most difficult to achieve and even more difficult to maintain.

As I continue my journey, I am acutely aware of new and innovative ways to maintain the trust in the Lord that I have embraced for years and hopefully for years to come. The passage from Nahum is one of those touch stones that provide encouragement to deepen and maintain my trust in the Lord.

This passage begins with the most important perspective one must possess if there can be any meaningful measure of trust in the Lord. That is the conviction that God is good. This is a firm foundation on establishing a truly valid trust in the Lord.

Galatians 5:22-23  New King James Version

22 But the fruit of the Spirit is love, joy, peace, longsuffering, kindness, goodness, faithfulness, 23 gentleness, self-control. Against such there is no law.

The goodness of God is fundamental to His Spirit. The challenge for us is to see it and believe it. One might say that is so easy. No it isn’t, not when we are faced with the biggest challenges. The thoughts come fast and furious: “Why would God allow this to beset me? What shall I do now? Where do I turn?

If we truly believe and know from experience that God is genuinely and forever good, then we can fix our trust on that. As soon as we can set the fact that God is good, we can then move on to the next step, see Him as a stronghold in our time of trouble. This is a key stage in navigating positively the trouble life continually join us in our life’s travel. He is meant to be our strong refuge, our potent advocate, yes, our Savior!

Now we come to a most powerful truth, He knows those who trust in Him! Imagine the inspiring strength that gives us when we can appreciate that He knows ME! I am not alone! He knows me and my situation. And there is no situation that He can’t handle for me. Wow! Who knew that trust in Him could have such profound power? But it does! And it’s really all we need when the challenges seek to overwhelm us.

TRUST IN THE LORD WITH ALL YOUR HEART!

As I am want to do, I always explore additional versions of a profound bible passage. Here are a couple for you to consider and see if new feelings course through your soul, heart and mind.

Nahum 1:7 New Living Translation

The Lord is good,
    a strong refuge when trouble comes.
    He is close to those who trust in him.

Nahum 1:7 Amplified Bible

The Lord is good,
A strength and stronghold in the day of trouble;
He knows [He recognizes, cares for, and understands fully] those who take refuge and trust in Him.

 

COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

 

TURNING POINTS

This bible passage and the sermon on Sunday July 2nd that opened new vistas on the concept of “trusting God”, I found it very comforting to realize that God knows those who trust Him. God knows me. I hope others will see the value of trusting God genuinely and experiencing the expansion of its value.

 

Grieving V

Grief is in our hands, we can lament the “loss” or celebrate the eternal treasures someone passed on to us through the profound love shared in a life together.

I choose the latter.

It brings me peace and comfort and gratitude that blossoms into joy. Joy that we had each other long enough to know authentic love. Joy that God saw fit to bring us together in this life and find love and friendship that continue to reap an abundant harvest of treasured gifts.  

COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINTS

When I see social media posts that provide new insights into grieving, I consider the sentiment expressed and seek to understand what prompted it. Each such experience enhances the mastery of my grieving process and brings new joy to my heart.

The New Commandment

John 13:34-35 New King James Version

 34 A new commandment I give to you, that you love one another; as I have loved you, that you also love one another. 35 By this all will know that you are My disciples, if you have love for one another.”

I have read this Bible verse hundreds of times in my life. But when communing with the Holy Spirit, there is always something new in the realization of its depth. Sometimes, there is a new perspective that opens, and I think, “why didn’t I see that before?”

Seeing a new understanding of an old word highlights the obvious that wasn’t so obvious on previous visits to the word. This prompts the thought I need to combat the feeling that I can dismiss the possibility of new revelations when I see a word again and again.

The children’s choir in South African were signing a song that employed the “New Commandment” as the lyrics to a song that moved my soul.

It dawned on me as I contemplated the singing of “A New Commandment” that I must become more aware of just how Jesus has loved me.

As I consider this notion, which should have been self-evident those hundreds of time I read it before, requires some very deliberate and focused introspection. I anticipate a long and interesting exploration of just how in the myriad ways Jesus has loved me and those near and dear to me.

COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINTS

When I am extricated from my daily rituals by some unexpected event or experience, I find there is a turning point lurking in the moment. This was one of those moments. I have always appreciated what God has done and continues to do in my life, but there is always room to enhance my depth of gratitude.

Dropping Stones

One of the most well-known words of Jesus in scriptures are “He who is without sin, caste the first stone.” The story that led to that poignant moment in history and the consequence it inspired is packed with lessons. For anyone seeking to become the best person they can be, these lessons cry out for serious and authentic personal introspection.

I thought it would be a good experience for my readers to explore the thoughts that follow and discover value as they have for me.

For context, I offer these two translations to remind us of the story.

John 8:1-9 Living Bible

Jesus returned to the Mount of Olives, but early the next morning he was back again at the Temple. A crowd soon gathered, and he sat down and talked to them. As he was speaking, the Jewish leaders and Pharisees brought a woman caught in adultery and placed her out in front of the staring crowd.

“Teacher,” they said to Jesus, “this woman was caught in the very act of adultery. Moses’ law says to kill her. What about it?”

They were trying to trap him into saying something they could use against him, but Jesus stooped down and wrote in the dust with his finger. They kept demanding an answer, so he stood up again and said, “All right, hurl the stones at her until she dies. But only he who never sinned may throw the first!”

Then he stooped down again and wrote some more in the dust. And the Jewish leaders slipped away one by one, beginning with the eldest, until only Jesus was left in front of the crowd with the woman.

John 8:1-9 The Message

To Throw the Stone

 1-2 Jesus went across to Mount Olives, but he was soon back in the Temple again. Swarms of people came to him. He sat down and taught them.

3-6 The religion scholars and Pharisees led in a woman who had been caught in an act of adultery. They stood her in plain sight of everyone and said, “Teacher, this woman was caught red-handed in the act of adultery. Moses, in the Law, gives orders to stone such persons. What do you say?” They were trying to trap him into saying something incriminating so they could bring charges against him.

6-8 Jesus bent down and wrote with his finger in the dirt. They kept at him, badgering him. He straightened up and said, “The sinless one among you, go first: Throw the stone.” Bending down again, he wrote some more in the dirt.

9-10 Hearing that, they walked away, one after another, beginning with the oldest.

As I read these and other translations, nuances of the scene come into view. I see the spiritual leaders of the time, much like the politicians of today. They had the law as a weapon to use to meet their ends. In this case, the ends they were aiming for was to discredit Jesus who they saw as a threat. They were using the woman as their pawn to trap Jesus. I ask myself; do I fall into such a trap as these leaders did? I wonder what these people would have done with their stones if Jesus was not in the picture? Would they have stoned her?

I need to understand and know “what are my stones?” And what are the circumstances that would make me think that I am justified in throwing them? My first impulse is to see my stones as possible judgements that may arise from prejudices I have not yet purged.

1 Corinthians 10:23 New International Version

The Believer’s Freedom

 23 “I have the right to do anything,” you say—but not everything is beneficial. “I have the right to do anything”—but not everything is constructive.

The stones we humans gather find justification in the sentiment expressed in these words from Paul who was an attorney by education and profession in his previous “career”. The excuse that whatever I choose to do is permitted by law, hence my actions regardless of effect on others is acceptable and is justified in my “stone throwing”. Now Paul makes it clear that though some actions are legal under the law, they are not beneficial or constructive for our journey to love one another as we have been loved.

This ushers in the thought that Jesus, as the paragon of human behavior that God hopes we would aspire, gave us a standard to use in our lives. Jesus in His last moments uttered two very telling statements relative to our “stones”.

Luke 23:34 New King James Version

 34 Then Jesus said, “Father, forgive them, for they do not know what they do.”

For all the years I have read these words I ascribed them directed to the soldiers who were carrying out the crucifixion orders of Pilot. But considering the stones story, I wonder if Jesus’ request for His Father’s forgiveness was meant not only for the soldiers but also the Jewish leaders and the crowd of onlookers assembled for the sheer pleasure of the crucifixion spectacle.  

The thought of Jesus asking for His Father to forgive me brings the sweet sound of my stones dropping to the pavement. The thought of that which followed this moment on cross ought inspire deliberate release of the stones I may still grip.

After the crowd’s taunting Jesus in His agony, the unrepentant thief at Jesus side joins the taunting initiated by the crowd. The other thief rebukes his counterpart and acknowledges Jesus as Lord. Then a gracious Jesus hears his plea and despite suffering insufferable agony he summons sufficient strength to give the thief hope.

Luke 23:42-43 New King James Version

42 Then he said to Jesus, “Lord, remember me when You come into Your kingdom.” 43 And Jesus said to him, “Assuredly, I say to you, today you will be with Me in Paradise.”

The love of Jesus instantly responds to the authentic repentance of the thief at His side with absolution. Jesus promise to the thief is also for those willing to repent their sin and accept the grace of Jesus. The sweet sounds of stones falling to the pavement and the repentant heart opens the way for our salvation.

COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINTS

The perception these revisited scriptures can inspire in me will hopefully open a more detailed introspection into my life. With a renewed vision of my prejudices and the work I have before me to drop them as stones will bring me closer to becoming transformed into the image of Jesus. I hope that it will be said for you as well.

 

 

 

No Strings Attached

 

There are in life situations where we make a commitment. Signing a contract or buying a car or a house, the buyer makes a commitment and so does the seller. We have all heard the term “buyer beware” and “it’s all in the small print”. These allude to the fact that when a deal is not “above board” there are things deliberately hidden that if known would kill the deal.

When something seems “too good to be true” there are hidden strings that will bring regret when they are eventually discovered. My old high school teacher used to pound into us students his warning, “You can’t get something for nothing!” His message was: look out for the strings attached and buried in the deliberately very small fine print.

We ought to be wary when buying or entering into any contract. Go with our eyes wide open for the hidden strings. But we also need to consider our conduct relative to our commitments that we make in our life. Do we operate with our own hidden strings, or does our fine print that deceives the other party exist in the agreements we make?

At this point you might be wondering where I am going with this. I am considering the spiritual commitments we make in our relationship with our Lord. Jesus was well aware of the human condition that couldn’t be missed during his 30 years of growing up in the society of His time. He surely saw many instances of “fine print” and “strings attached” in the activities to which He was privy.

As Jesus assembled His followers, He taught them what He needed and expected from discipleship. There was one very telling moment that revealed His “no strings attached” condition. He had answered a rich man’s question as to what he needed to do to get to heaven. Jesus told him to sell all that he had and follow Him. Sadly, the “strings” of his wealth were attached to his soul, and he walked away. Then Peter speaking for the others said, “we have given up everything to follow you!” And Jesus answered.

Matthew 19:29 [New King James Version]

29 And everyone who has left houses or brothers or sisters or father or mother or wife or children or lands, for My name’s sake, shall receive a hundredfold, and inherit eternal life.

And in the Message translation, the thought is amplified:

Matthew 19:29-30 [The Message]

28-30 Jesus replied, “Yes, you have followed me. In the re-creation of the world, when the Son of Man will rule gloriously, you who have followed me will also rule, starting with the twelve tribes of Israel. And not only you, but anyone who sacrifices home, family, fields—whatever—because of me will get it all back a hundred times over, not to mention the considerable bonus of eternal life. This is the Great Reversal: many of the first ending up last, and the last first.”

We know from John what eternal life is for us.

John 17:3 [New King James Version]

And this is eternal life, that they may know You, the only true God, and Jesus Christ whom You have sent.

As we progress in our knowing the Triune God, we make more and more progress when we can cut the strings attached to our being. Each of us has our own unique strings. Jesus noted that the strings that hold us back and bind us are not trivialities, but things we hold very dear. It serves us well when we can raise the level of our thinking to that of our God who tells us “Your ways are not My ways, and your thoughts are not Mine; for My ways and thoughts are higher than yours.” [Isaiah 55:9]

I am reminded of another experience with Jesus when a woman accused of adultery was brought to Him. The accusers, armed with the stones designed to mete out the expected judgement of death by stoning asked Jesus for His judgement. With pregnant pause Jesus said, “he who is without sin, cast the first stone.” One by one, stones were dropped harmlessly to the ground as the accusers humbly left the scene. Our stones are the prejudices and opinions we tenaciously grip. They too are strings that must become unattached to us.

So how do we raise our thoughts and my ways? Seek communion with the Holy Spirit. He will gladly lead our thoughts to be elevated to see our stones that need dropping and our strings that need trimming. Then on the Day of the Lord, we can stand prepared to go with Him, NO STRINGS ATTACHED!

COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINTS

Preparing ourselves for the return of Jesus, we need to do personal appraisals of how we stack up to our God’s expectations from and hope in us. A significant part of that preparation is the assessment of our thoughts and prejudices. What strings do I yet need to sever and what stones do I need to release. We need to become like little children with their free spirituality that adult reality steals from us and ushers in cynicism. Our trust in the Lord must be deep and authentic enough to negate our insistence on understanding. Reaching a state of acknowledging our God and His love for us opens our hearts and mind to the whisper of the Holy Spirit as He seeks to guide us in word, thought and deed. 

Gold Bricks

Isaiah 55; 6 & 8-9

Seek the Lord while He may be found, call upon Him while He is near.
“For My thoughts are not your thoughts, nor are your ways My ways,” says the Lord.
“For as the heavens are higher than the earth, So are My ways higher than your ways,
And My thoughts than your thoughts.  

I remember a story that I have come to believe is a great way to explain the limits of our human condition, our human thoughts and ways. It is oh so difficult for us to escape the reality of adult perspectives of life that is mired in the material world in which we live. We just seem to be unbale to escape our physical limits and allow them to shackle and limit our spiritual thoughts.

The story was about a very successful business man who acquired an enormous wealth. So bound to his wealth that when he was facing the inevitable end of this life, he sought to bargain with God. He made his case in a prayer, meticulously stating his altruism and his generosity toward his neighbors in need.

God granted him the ability to take one carryon suitcase with him when he died. He prepared for his eventual demise by placing half a dozen gold bricks into the suitcase and awaited his death. When he died and arrived at the gates of heaven he was met by the greeters at heaven’s gates. Surprised by the unprecedented suitcase being hauled by the man who stood before them, they asked “What have you here? You can’t bring anything from earth into heaven!”

Respectfully he explained that he had requested permission from God to bring something of his wealth into heaven. “God allowed me to bring one carryon suitcase.” He answered.

The greeters asked him to open the suitcase, curious as to what he had valued so highly. Opening the suitcase revealed six bright shining gold bricks. The greeters broke into hysterical laughter. The man stood in shock. Why did his treasure evoke such an unexpected response? He thought.

“What’s so funny?” he asked.

“You’ve brought pavers!? The streets of heaven are paved with these. We walk on them. You must know that heaven is not of the world from which you come.”

Jesus said you need to become as little children to be able to understand heaven. Children are not bound by the “adult reality” we have become afflicted with as adults. We need to get back to the open-mindedness of childhood.

COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINTS

Striving to escape the limits of “adult reality” is critical for us to achieve the wisdom of Jesus’ statement that we need to become like little children. I believe He meant that we  need to change our thinking and with it our ways to become more like Him. He has left us with countless lessons of how to achieve becoming like children in thought and deed.

 

My Cup Runs Over

Psalm 23:5 

New King James Version

5 .   .   .  My cup runs over.

 

David’s psalm has become one of the most quoted biblical passages. I always enjoy exploring the details of such passages. Finding not so obvious meanings embedded in the fine points of the text fascinates me. “My cup runs over” begs exploration.

What does it take for someone to proclaim, “My cup runs over”? In the context of David’s life, he must have recognized that God had given him more than he asked for and maybe more that he thought he needed. David suffered with many enemies. He relied on God for guidance and strength. Experience revealed to David that God not only heard him but responded to him in a generous and even lavish way.

What about me? Can I say that “my cup runs over”?

Life has taught me that without doubt or question, when considering my reliance on my God, my cup runs over day after day. This recognition prompts and even compels profound gratitude. Imagine asking for what I think I need and God providing more. The more He provides is what our omniscience God knows what I really need in the moment. From my perspective, my cup just ran over. I got more than I asked for. What a God!

When I see how God loves me, despite my weaknesses and failings, gratitude in the extreme brings joy untold.

But just how and when does “my cup run over”?

I am driving to a funeral service. I stop at a traffic light. No cars in front of me, a small line of cars to my right. I seldom if ever check my rearview mirror while awaiting a light to change. But suddenly, I feel the urge to peer into the mirror. I see a car racing toward me at a speed and distance that tells me it’s never going to be able to stop. I glance both ways and floor the accelerator storming through the red light.  Another glance at the mirror reveals that car screaming through the intersection with smoke billowing from all four tires as the driver attempts to stop. My cup ran over big time. How could I not profusely thank my God for what just happened. I didn’t ask for that. But God provided just when He knew I needed it.

I am at an intersection about to make a right turn. Looking to my left to see a break in the traffic so I can execute my turn. When the break comes I hit the brakes hard instead of the accelerator. I look to my right and there is a pedestrian walking in front of the car. Had I hit the accelerator, I would have hit him and possibly killed him. Again, God caused my cup to run over. I didn’t ask, but He provided.

My book, Solomon’s Recipe, documents many of “my cup runs over” experiences.

What are your “my cup runs over” experiences? Search them and experience the profound gratitude that fills your soul.

COPYRIGHT © 2023 ALLAN EDWARD MUSTERER All Rights Reserved

TURNING POINT

The important recognition that God’s love is so deep for me that He causes my cup to runover at the precise moment it is needed is my turning point. God listens to me and adds His wisdom to His answers to bless me. Authentic gratitude springs forth from such recognition.